What is Encephalocele?

Encephalocele is a congenital deformation of the brain and spinal cord during pregnancy, where the spinal cord doesn’t properly close. This results in a large sac of brain tissue and spinal fluid protruding from an infant’s head exposing and making vulnerable crucial parts of the nervous system.

What issues do children with Encephalocele face?

DEVELOPMENTAL DELAYS

Neurological impacts include mental disabilities, delayed growth, lack of coordination, and loss of motor function

STIGMA

Children and their families are often ridiculed or excluded from community life and activities, leading to isolation

LIFE-THREATENING

Encephalocele can be life-threatening if not treated

How does surgery change a
child’s life?

The visible tumor or exposed tissue is resolved and neurological conditions caused by brain swelling and excess fluid can be reduced
Parents and children experience hope as they are accepted into community life
Depending on the location of the encephalocele, prognosis after treatment is favorable